Friday, September 13, 2013

Just When I Lose Interest in the ME/CFS Freak Show…

By now I am convinced that ME/CFS is not a monolithic disease, but a pool of superficially similar looking diseases. Take a large enough group of persons diagnosed with ME/CFS (regardless of which criteria used), then maybe 12% have "disease A", 10% have "disease B", 8% have disease C and so on. And I think that most people who research or write about ME/CFS are naive at best, and idiots at worst (with Light and Snell being the notable positive exceptions). And quite frankly I doubt that anything that comes with the "ME/CFS" label will help me regain my health.

But when an anonymous commenter* pointed me to some links, and I saw one about Lipkin I was intrigued. Lipkin may or may not be onto something – only time will tell. And it looks like some results from the Lipkin/Honig study are in. Unfortunately only one unreliable person has blogged about this (and as is typical for him he mumbles many things together, in order to spread optimism to those poor ME/CFS patients) – so I will have to wait until I find something more solid (like e.g. Research1st).

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* And to answer: I am not interested in some voodoo "gut treatment". I think the "methylation protocol" is at best wishful thinking, at worst quite expensive and possibly dangerous. I think the ME/CFS forums are cesspools. And no, I don't know who Gerwyn is. And quite frankly I try as best as I can not give a flying hoot about that idiot. Or the rest of the ME/CFS freak show.
Posted by Tony Mach Posted on Friday, September 13, 2013
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